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Showing posts from March, 2022

EP0057-201 Phase 2A Trial - Cycle 6, Day 1, eleventh infusion day - 17 March 2022

 Clinic and treatment days are at the better end of the fortnightly round, but the past fortnight has been a bit grim. The trial started fairly gently back in September/October and I was hopeful it wouldn't be too destructive of everyday life, but things have been going downhill - badly enough for the chat to have started being about leaving the trial or at least having a fortnight break. It's a mix of increasingly active guts and an increasing level of 'chemo' type effects. Perhaps not so much the plummetting haemoglobin just now. The gut situation has become ridiculous: I'm housebound and tethered to the loo for far too many days in the fortnight now and anxious about going out on other days - it's still possible that there's an element of unfortunately-located cancer to it, but feel it must be partly the treatment. I still don't feel as straight nauseous as on the previous chemotherapies, so there doesn't seem to be much risk of actually throwing ...

FOR THE SECOND TIME OF TRYING - EP0057-201 Phase 2A Trial - Cycle 5, Day 16, tenth infusion day - 4 March 2022

 Here we go again. Cycled in again - 3rd time in this week - did't feel quite so bad although still puffing and blowing. It's nice to think that I might have made a bit of my own Hb, or have slightly increased my fitness but maybe it's just that there was no headwind - don't think there was a tailwind. And going in later with no tube strike meant fewer stops and restarts in much reduced traffic, so I could take advantage of gravity for longer stretches - hoorah. Chemo Daycare's looking very busy on arrival at 12:30, which is already a late start, so have been pushy and texted the trial practitioner in case I need someone in my corner to make sure I don't end up missing treatment again due to time constraints. If that happened I'd be depressed/mightily pissed off/despairing - must burrow into the online Thesaurus to find some more original words although I still prefer to leaf through the grubby pages of the hard copy one - I just managed to intercept Christo...

EP0057-201 Phase 2A Trial - Cycle 5, Day 15, tenth infusion day - 3 March 2022

 Haemoglobin was 97 at Tuesday clinic. Resistance offered by Highgate North Hill to being cycled up today suggests it has dropped further, but options are few on a tube strike day and it has been even harder work! Traffic on Tuesday strike day was epic - the jam started outside the closed gates of East Finchley station and fumed ahead all the way to the Macmillan Centre. Just a few gaps to allow some eejits to roar past in a cloud of particulates before coming to a finger-tapping halt at the next traffic regulation measure.  Traffic lighter today; most anxiety induced by a bloke who had either never ridden a bike before or who had forgotten how - using up a lot of unavailable road zigzagging to get his balance then thinking he could squeeze between a couple of shiny apples of their drivers' eyes without provoking a flurry of F words - he couldn't. The other stand out indicator of a strike-day cyclist is the accompanying sound of a maintenance-free bike - the squealing brakes, ...