Janet's blog

Monday's Covid swab was negative, Ca 125 was down a little bit more to 11, CT scan shows everything nasty has got smaller.  So I'm back at the Macmillan Centre again. Still have a bit of a sore mouth, watery eyes, a doxorubicin rash and the bottoms of my feet feel like I've got gravel in my shoes, but I'm fit for another round of poison. The last month was a bit gruelling - I felt  a bit gruelled for quite a while. A bit worse than usual due to the gut-onslaught after the scan and then just as WBCs became competent again, I had a flu jab which certainly made me feel like I'd had a flu jab for a day and a half or two. Return of decent energy only came on Sunday just gone when I was attacked by a housework demon. It seems quiet in the Centre today and I've actually been able to sneak a quick pic of one corner of the chemotherapy suite without risking upsetting anyone - partly because everything has been spaced out for Covid-prevention purposes and there's been...

 On Guest@UCLH again while I wait for CT scan. Waiting of course involves that drink of 1L of strange-tasting light-clear but radio-opaque fluid. Quite a big ask. I had to rearrange the original appointment so that we could still go to Devon for a few days before the  next chemo - Tier 2 still says YES! The appointment I got was 9:30 which  meant a 6am breakfast which was another big ask but achieved. Suspected the whole scan business would go badly without morning sustenance - porridge with hazelnuts and raisins, honey and milk. Wonder what that'll look like to X-rays... It's been a bit of a gruelling 2 weeks since the last chemo. Three domperidone before meals in the day, then an ondansetron when I wake up feeling sick in the middle of the night, coupled with more frequent eating sessions got me through the first five days, albeit with a pretty constant, underlying nausea. But this regime seems to come with a longer-lasting nausea linked to being tired or not having som...

Apologies to regular readers - this should have published on the day but didn't and I haven't looked since (17.10.20). ------------------------------------------------------------------------------------------------------------------------------------ Here we are again, and this time accompanied by a little friend. I don't know how long it's been inchworming around my fleece but it's going for it at the moment.   I kept an eye on it for quite a while, hoping to find a member of staff who didn't look busy or caterpillar averse and who might be prepared to take it  up to the roof garden, but that didn't happen, and it did elude me eventually. All that inchworming must have been quite energy intensive, and the next time I saw it was two hours into my chemo infusion and, suffice to say, it was no longer inchworming. Very hungry caterpillar - no food - only one outcome. 😢 I was late for this chemo - couldn't quite summon any pace this morning, couldn't l...