ICON9 Trial - Check up the fourth - 30 March 2021

Referencing the wider world, we're starting to get a bit excited/fearful about Covid restrictions easing. We're organising family walks/picnics - one in London somewhere and one in the country. We're looking forward to a trip to Devon in April. We've booked a vegetarian B and B hotel in the Lake District for the back end of August.  The children have given Christopher the green light to do the Saturday morning local shopping. Bury Farm are back to delivering manure and mine has arrived - many thanks to the muscle men who've scrambled to help me shift it - you know who you are. I've been planting a row of potatoes per allotment visit. I've shown vacant allotment plots to a couple of people. Am a bit twitchy about not having been called for my second vaccination, but trust that it will happen before the 12 weeks is up.

It was a close thing, fitness-wise, but I did cycle in for this check up. It's the last of the two-weekly ones;  shifts to four-weekly from here. Not much to report - usual battery of tests and questions with the addition of a pot of pee and four extra tubes of blood for the research people - that'll be my excuse if I don't manage the cycle ride home . I've learnt how to recognise two trial practitioners and one trial nurse over masks and behind face shields. Today a new nurse has appeared having been deployed to ICU for a while. But this will be easy - the other three are women and they don't have beards.

Symptom-wise, going back on the olaparib after the positive-Covid-test break has resulted in a backward step but not all the way back to the beginning. There's usually some degree of nausea before meals which is not great for appetite, and around two hours after the pills there's usually something going on. I haven't got the stamina or fitness I want and sometimes have to feel tired for a while and rest, but it's all bearable and I'm hopeful it will continue to fade away. 

The Ca 125 from 2 March is back - 8 - reassuringly low. Lymphocytes also low, but Dr M looked back at what they were before I had any treatment at all and they were low then, so maybe I'm just a low-lymphocyte specimin. I'll try to stop worrying away at that one. 


I've been sitting in the Macmillan Living Room having hot chocolate and banana. All gone, so will take my chances and saunter over to the Trial Pharmacy in the main building and see if my pills for the next four weeks are ready. 


Comments

  1. Toni30 March 2021 at 05:56

    Glad you seem to be coping. The walk sounded fab the week before. Don't worry too much about 2nd vaccine mum got a call just a week before then we all scrambled around to see who could take her!
    Miss you lots, keep up the good work and love to everybody, oh BTW got chrissy pressies here for you from Rachael might make it before next Christmas why break a habit of a lifetime!!!!. Xxx

    ReplyDelete

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