CARBOPLATIN + GEMCITABINE CHEMO - CYCLE 2 DAY 8 - 7 JULY 2022

 Gemcitabine only day. Have done three days of filgrastim injections since 30 June, gave a blood sample  a couple of hours ago and assume I'm Ok for treatment neutrophil-wise as I'm cannulated and pre-medicated. Ah - neutrophils are 5.15 normal Hb 117 normal

One of my Ladies of Leisure Zoom group once remarked that having cancer was like a full-time job. It has felt like it this last week. I've spent several hours in three sessions chasing stoma supplies which I was led to believe would follow a well-oiled path every time I ordered. Ok, so I've only done two orders as yet, but they've both required close monitoring by me and the Coloplast people. Difficult to really be sure but I think it's a failure to approve the prescription at the GP's which causes it to founder.  Then a text reminder to an appointment I didn't know about appeared on the same day as the hard copy invite letter  to spend the best part of a day in UCLH's Nuclear Medicine department having  my Glomerular Filtration Rate (GFR) done again. This appointment didn't appear on the MyCare App which normally has all the appointments lined up, even if they keep changing and changing format. More time hanging on a phone line to no avail although an email did work - turns out the pharmacist requested this and the docs have OK'd it but NucMed's appointments don't make their way to the MyCare app. I then wanted to chase someone up to find if the appointment could be moved so that my 'good week' might be used for a Devon trip. This meant getting hold of the Clinical Nurse Specialist - a matter of leaving a message then being sure to be phone-ready at all times to take the call back. Unfortunately, I was assured that the test really needed doing on that day -  I haven't had one done since the very early days of this malarkey, they'd have liked a baseline one from before the start of this treatment, but that ship has sailed and this is already second best. It's  needed because apparently the carboplatin is prescribed on the basis of one's excretion rate as opposed to height and weight, and although GFR can be estimated from blood samples, this is the way to get an accurate measurement. So no Devon trip this time round. 

Comments

  1. Ali23 July 2022 at 12:22

    Sorry you won't make it to Devon this time around :( Hopefully soon xx

    ReplyDelete

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